22q11 Ireland Support Group

The 22q11 Ireland Support Group was set up in 2007 to provide help, support and accurate information to Irish families. Our Children are heroes. They are born with a chromosomal disorder that not too many people know about (including us!) which means that basically they grow up in a world surrounded by adults who do not understand the,. Apart from their many medicinal problems the neuro-cognitive profile of 22q is not very well recognised and this lack of awareness can and does cause distress both to the children themselves and those involved in their care.
As parents therefore it is crucial that we have accurate information on 22q so that we can help give our children the best chance to reach their full potential in life. Although we have some excellent professionals here in Ireland specific ‘syndrome knowledge’ of 22q is very limited. We source the very best international expertise on 22q DS and bring the relevant specialist here to give us the most accurate information and up-t-date research which in turn ensures that we have the knowledge we need to better the quality of our lives and that of our children. For us knowledge is power, without it our children can and do suffer needlessly and what hurts them hurts us. Our conferences and family get-togethers are very important days – we are very appreciative of your help in making them happen.
22q11 Ireland Support Group
Carmichael House,
North Brunswick street,
Dublin 7
Tel: +353 87 741 2856